EGRP News Flash - January 7, 2011

NCI Participating in RFA to Develop Evidence Base to Inform Decision-Making About Returning Research Results to Participants in Genomic Studies

The National Cancer Institute (NCI) will participate in the Request for Applications (RFA) titled “Development of a Preliminary Evidence Base to Inform Decision-making about Returning Research Results to Participants in Genomic Studies.” The lead sponsor is the National Human Genome Research Institute (NHGRI). The RFA uses the Research Project Grants (R01) funding mechanism. Letters of Intent are due February 10, and applications are due by 5:00 p.m. local time of applicant organization on March 10, 2011.

The purpose of this RFA is to stimulate empirical research to develop a preliminary evidence base to inform decision-making about whether, when, and how to offer to return individual research results to participants in genomic research studies (especially whole exome or whole genome sequencing studies) or to individuals who have provided samples or data for genomic repositories (such as biobanks or databases such as dbGaP).

The RFA is aimed primarily at investigators who propose behavioral or social science research projects in which there is likely to be direct interaction with research participants or other stakeholders involved in current, ongoing genomics projects (especially whole exome or whole genome sequencing projects) or in genomic sample or data repositories.

The National Institutes of Health (NIH) intends to commit approximately $2 million per year to this RFA. It is anticipated that 3-4 grants will be awarded. Budgets are limited to $500,000 per year in direct costs for each project year. It is anticipated that the budgets of many applications submitted in response to this RFA will be substantially less than this amount.

EGRP Contact: Laura D. Buccini, Dr.P.H., M.P.H.

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