EGRP News Flash - March 14, 2008
Funding Opportunity Announcement: Rare Diseases Clinical Research
Consortia (RDCRC) for the Rare Diseases Clinical Research Network
On behalf of the NIH Office of Rare Diseases (ORD), NCI's Epidemiology
and Genetics Research Program (EGRP) announces a Request for Applications
(RFA) for new and renewal cooperative agreement applications (U54)
for Rare Diseases Clinical Research Consortia (RDCRC). Proposals
are sought for RDCRCs that individually focus on a subset of related
rare diseases.
Each RDCRC will consist of a consortium of clinical investigators,
institutions, and relevant organizations, including patient support
organizations, focused on a subgroup of rare diseases. Support is
provided for 1) collaborative clinical research in rare diseases,
including longitudinal studies of individuals with rare diseases,
clinical studies and/or phase I, II, and II/III trials; 2) training
of clinical investigators in rare diseases research; 3) pilot and
demonstration projects 4) a test bed for distributed clinical data
management that incorporates novel approaches and technologies for
data management, data mining, and data sharing across rare diseases,
data types, and platforms; and 5) access to information related to
rare diseases for basic and clinical researchers, academic and practicing
physicians, patients, and the lay public.
Required components of a RDCRC application include:
- A minimum of two clinical research projects (at least one of
them must be a longitudinal study);
- A training (career development)
component;
- At least one pilot/demonstration project;
- A Web site for educational and research resources in rare
diseases;
- Collaboration with patient support organization(s); and
- An administrative unit
The NIH ORD and participating NIH Institutes and Centers intend
to commit approximately $8.75 million in Fiscal Year 2009 to fund
up to seven new and/or renewal grant applications for RDCRCs. If
additional funds become available, approximately ten consortia
may be funded. An applicant must request a project period for five
years. In general, budget requests should be limited to $1.25 million
in total cost.
Letters of Intent are due July 20, and applications are due by
August 20, 2008.
Contact: Elizabeth Read-Connole, Ph.D., NCI Representative to the
Office of Rare Diseases Committee; email bconnole@mail.nih.gov.
Access the NIH Guide for Grants and Contracts for details:
RFA-OD-08-001.
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