Publicly Available Access Policies for Biorepositories Associated with Investigator-Initiated Population Science Research

• NCI Best Practices for Biospecimen Resources
• Guidelines for use of the Nurses’ Health Study Data: External Collaborators
• Guidelines for use of the Nurses’ Health Study Blood Bank: External Collaborators
• Guidelines for use of the Health Professionals Follow-Up Study Data: External Collaborators
• Guidelines for use of the Health Professionals Follow-Up Study Blood Bank: External Collaborators
• Guidelines Governing the Use and Publication of Southern Community Cohort Study Data
• Policy from Fred Hutchinson Cancer Research Center on Management of Human Biological Materials Collections in Research Collaborations with Commercial Entities
• Esophageal Adenocarcinoma and Barrett’s Esophagus Research Consortium (Bylaws, Consortium Agreement}
• Privacy Protocol for the Australian Longitudinal Study on Women’s Health
• Australasian Biospecimen Network: Guidelines for Biorepository Protocols
• Cooperative Human Tissue Network (CHTN) Use by Third Parties
• National Biospecimen Network Blueprint
• Agricultural Health Study Policy 2-4: Guidelines For Collaboration
• Multicenter Hemophilia Cohort Study (MHCS)-II: Guidelines for Proposing Research Using MHCS-II Data or Specimens
• Prostate, Lung, Colorectal, and Ovarian Cancer Screening Trial
• Cancer Family Registries
• Southwest Oncology Group Prostate Cancer Prevention Trial

If you would like to add your study’s access policy or suggest any changes to this list, please contact Daniela Seminara, Ph.D., M.P.H. .