Adult Life after Childhood Cancer in Scandinavia (ALiCCS)

Contact: Jeanette Falck Winther, M.D.

Study Website: http://www.aliccs.orgExternal Web Site Policy

Number of Enrolled Cancer Patients/Survivors: 55,000 patients and 275,000 population comparison
(a large population-based patient cohort from Denmark, Finland, Iceland, Norway, and Sweden; age at diagnosis < 20 yrs of age)
Years of Diagnoses of Enrolled Cancer Patients/Survivors: Start of the Nordic cancer registries in the 1940s and 1950s till 2008
Approximate Years of Follow-up: Up to 60 years
Cancer Sites Represented: Other: Childhood cancer (all types)
Biological Specimens Collected: None
Treatment Outcome Measures: Physician/Medical Record Reported
  • Late Medical Event
  • Cancer Recurrence
  • Death
  • Other: Birth registry variables, Drug prescriptions
Co-morbidities at Study Entry: Diabetes
Heart Disease
Pulmonary Disease
Other: (all discharge diagnoses)
Lifestyle Factors: None
Treatment Data: Surgery
Radiation
Chemotherapy
(to be included in the coming years for selected sub-cohorts)
Treatment Data Assessed By: Electronic Record (cancer registries and other health registries)
Chart abstraction (medical records; radiotherapy schemes)
Is the study open to collaboration? Yes

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