National Wilms Tumor Late Effects Study

Study Website: http://www.nwtsg.org/

Number of Enrolled Cancer Patients/Survivors:	9236 / 7861 alive at last follow-up
Years of Diagnoses of Enrolled Cancer Patients/Survivors:	1969-2002
Approximate Years of Follow-up:	Median 14.7 years (IQR 8.4 - 22.8) for those alive at last follow-up
Cancer Sites Represented:	Kidney (Wilms Tumor)
Biological Specimens Collected:	Blood/Blood Fraction Normal Tissue Formalin Fixed Tumor Tissue Fresh Frozen Tumor Tissue Urine (NWTS-5 ONLY* - Enrolled 1995-2002, ~2,200 patients)*
Treatment Outcome Measures:	Physician/Medical Record Reported Symptom Assessment Acute Medical Event Late Medical Event Quality of Life Cancer Recurrence Death Patient-Reported Symptom Assessment Acute Medical Event Late Medical Event Quality of Life Cancer Recurrence Death Other
Co-morbidities at Study Entry:	None
Lifestyle Factors:	None
Treatment Data:	Surgery Radiation Chemotherapy
Treatment Data Assessed By:	Chart Abstraction
Is the study open to collaboration?	Yes