Rare Cancer Genetics Registry

Contact: Dianne Finkelstein, Ph.D.

Study Website: http://www.rarecaregistry.orgExternal Web Site Policy

Number of Enrolled Cancer Patients/Survivors: 600
Years of Diagnoses of Enrolled Cancer Patients/Survivors: 2004-present
Approximate Years of Follow-up: 1
Cancer Sites Represented: Kidney
Leukemias
Oral Cavity & Pharynx
Pancreas
Stomach
Other (rare cancers)
Biological Specimens Collected: Blood/Blood Fraction
Buccal Cells
Treatment Outcome Measures: Physician/Medical Record Reported
  • Cancer Recurrence
  • Death
Patient-Reported
  • Symptom Assessment
  • Acute Medical Event
  • Late Medical Event
  • Quality of Life
  • Cancer Recurrence
  • Death
  • Other
Co-morbidities at Study Entry: Diabetes
Other
Lifestyle Factors: Smoking
Alcohol Use
Body Mass Index
Weight Loss/Control
Treatment Data: Surgery
Radiation
Chemotherapy
Hormonal Therapy
Treatment Data Assessed By: Patient Reported Questionnaire
Is the study open to collaboration? Yes

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