University of North Carolina (UNC) Health Registry/Cancer Survivorship Cohort

Contacts:

Study Website: http://www.unchealthregistry.orgExternal Web Site Policy

Number of Enrolled Cancer Patients/Survivors: 500 patients through Sept 2011; enrollment is ongoing with 10,000 anticipated cancer patients to be enrolled
(English and Spanish speaking, ~20% African American)
Years of Diagnoses of Enrolled Cancer Patients/Survivors: currently 2010-2011; enrollment is ongoing
Approximate Years of Follow-up: Annual follow-up to begin in 2012 and continue as long as funding available
Cancer Sites Represented: Bladder
Breast
Colon & Rectum
Kidney
Liver
Pancreas
Prostate
Stomach
Other (All sites eventually)
Biological Specimens Collected: Blood/Blood Fraction
Buccal Cells
Germline DNA
Formalin Fixed Tumor Tissue
Fresh Frozen Tumor Tissue
Treatment Outcome Measures: Physician/Medical Record Reported
  • Symptom Assessment
  • Acute Medical Event
  • Late Medical Event
  • Quality of Life
  • Cancer Recurrence
  • Death
  • Other
Patient-Reported
  • Symptom Assessment
  • Acute Medical Event
  • Late Medical Event
  • Quality of Life
  • Cancer Recurrence
  • Death (from family members/NDI)
  • Other
Co-morbidities at Study Entry: Diabetes
Heart Disease
Pulmonary Disease
Other
Lifestyle Factors: Smoking
Alcohol Use
Physical Activity
Body Mass Index
Weight Loss/Control
Other
Treatment Data: Surgery
Radiation
Chemotherapy
Hormonal Therapy
Bone Marrow/Stem Cell Transplant
Treatment Data Assessed By: Administrative Claims Data
Electronic Record
Chart Abstraction
Patient Reported Questionnaire
Other
Is the study open to collaboration? Yes

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