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Trends in 21st Century Epidemiology: From Scientific Discoveries to Population Health Impact

Session 3 Panel and Audience Discussion

Slide 1 of 6: Session 3 Panel Discussion

• Questions:
  • What developments are needed to make epidemiologic cohorts a cornerstone of the discovery to practice continuum?
  • How should NCI and NIH facilitate multidisciplinary collaboration to integrate these developments into the research portfolio?
• Moderator: Julie Buring, Sc.D., M.S.
• Panelists:
  • Julie R. Palmer, Sc.D., M.P.H.
    Boston University School of Public Health
  • Lyle Palmer, Ph.D.
    Ontario Institute for Cancer Research
  • Leslie L. Robison, Ph.D. (unable to attend)
    St. Jude Cancer Center
  • Daniela Seminara, Ph.D., M.P.H. (presentation not available)
    National Cancer Institute

Slide 2 of 6

Julie R. Palmer, Sc.D., M.P.H.
Boston University School of Public Health

Slide 3 of 6: Optimizing the Value of 21st Century Cohorts

Improvements in existing cohorts

• Online questionnaires
• Repeated measures
• Tx, recurrence, 2nd cancers
• Tumor tissue, TMAs
• Data from Census, EPA, etc.

NIH infrastructure support for collaborative research

• Consortia of multiple cohorts
• Centralize harmonization of cohort exposure data
• Facilitate access to CA registries, death files, Medicare claims data

Collaborations of individual cohorts with outside investigators

• Benefits: fresh ideas, maximization of valuable resource
• Mechanisms: logistics, funding

Slide 4 of 6

Lyle Palmer, Ph.D.
Ontario Institute for Cancer Research

Slide 5 of 6: Key features of new cohorts in the digital age...

• Online
• Responsive, constant evaluation
• Longitudinal over entire life course
• Large in scale
• Inclusive: Representative and diverse samples
• Comprehensive platforms for disease and health research
• Closely integrated with linked administrative health data
• Closely integrated with government, clinical and public health networks
• Engines for translation

Slide 6 of 6: A personalized home page for every participant, A platform for bi-directional data interchange

[Image] showing a web page that serves as a platform for bi-directional data interchange and engagement with participants in the Ontario Health Study, including information about study activities, the participant's profile, and study preferences.

Source: https://ontariohealthstudy.ca/en/your-personal-home-page