Agenda for the Second NCI Epidemiology Leadership Workshop: Understudied Rare Cancers

Co-sponsored with the NIH Office of Rare Diseases


Sunday, September 11 Topic
Conference Center at Harvard Medical School
4:00 p.m. – 5:00 p.m
Rotunda (3rd floor).
Poster Session I Set-up
5:00 – 7:00 p.m
Lobby (ground floor).
Registration
5:00 – 6:00 p.m.
Rotunda (3rd Floor)
Welcoming Reception and Poster Session
OPENING SESSION
6:00 p.m. – 6:45 p.m.
Amphitheater (ground floor)
Session Chair: Margaret Spitz, M.D., M.P.H.
Professor and Chair, Department of Epidemiology
The University of Texas M.D. Anderson Cancer Center

Hello! And Welcome!
Ed Trapido, Sc.D.
Associate Director, Epidemiology and Genetics Research Program
National Cancer Institute

1st NCI Epidemiology Leadership Workshop: Tobacco, Diet and Genes Rare Cancers Working Group Report
Isis Mikhail, M.D., M.P.H., Dr.P.H.
Program Director, Epidemiology and Genetics Research Program
National Cancer Institute

Statistics on Rare Cancers from the SEER Program
Ben Hankey, Sc.D.
Chief, Cancer Statistics Branch, Surveillance Research Program
National Cancer Institute

Cancer Registry Issues in Studying Rare Cancers: A NAACCR Perspective
Holly Howe, Ph.D.
Executive Director
North American Association of Central Cancer Registries

KEYNOTE ADDRESS
6:45 p.m. – 7:15 p.m.
Amphitheater
My 30-Year Love Affair with Hodgkin's Lymphoma – Lessons Learned
Nancy Mueller, Sc.D.
Professor, Department of Epidemiology
Harvard School of Public Health
7:15 p.m. – 7:30 p.m. Closing, Charge, and Mission: Who Are We and Why Are We Here?
Ed Trapido, Sc.D.
Associate Director, Epidemiology and Genetics Research Program
National Cancer Institute

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Monday, September 12 Topic
Conference Center at Harvard Medical School
7:30 a.m. – 8:30 a.m.
Rotunda: (3rd Floor)
Breakfast Meet and Greet with EGRP Program Directors and Others
NCI/NIH Staff
7:30 a.m. – 8:30 a.m.
Amphitheater (ground floor)
Training and New Investigator Awards
Lester Gorelic, Ph.D.
Program Director, Cancer Training Branch
National Cancer Institute
PLENARY SESSION
8:30 a.m. – 9:30 a.m.
Amphitheater (ground floor)
Creating Consortia: Rationale, Roadblocks, and Successes
Session Chair: Leslie Bernstein, Ph.D.
Professor, Norris Comprehensive Cancer Center
University of Southern California

Consortia: A Tool for Interdisciplinary Research in Epidemiology
Daniela Seminara, Ph.D., M.P.H.
Program Director, Epidemiology and Genetics Research Program
National Cancer Institute

An Example From the Brain Tumor Consortium
Melissa Bondy, Ph.D.
Professor of Epidemiology
The University of Texas M.D. Anderson Cancer Center

Discussion

PANEL DISCUSSION
9:30 a.m. – 10:30 a.m. Opportunities for Partnerships Along the DCCPS Cancer Control Continuum

Session Chair: Robert Croyle, Ph.D.
Director, Division of Cancer Control and Population Sciences
National Cancer Institute

Surveillance Research Program
Ben Hankey, Sc.D.
Chief, Cancer Statistics Branch, Surveillance Research Program
National Cancer Institute

Applied Research Program
Martin Brown, Ph.D.
Chief, Health Services and Economics Branch, Applied Research Program
National Cancer Institut

Office of Cancer Survivorship
Julia Rowland, Ph.D.
Director, Office of Cancer Survivorship
National Cancer Institute

NCI Cancer Information Service
Susan Rivers, Ph.D.
Senior Research Coordinator, New England Cancer Information Service
Yale Cancer Center

10:30 a.m. – 11:00 a.m.
Lobby (ground floor)
Break
10:30 a.m. – 11:00 a.m.
Rotunda (3rd floor)
Poster Session I Tear-down
Poster Session II Set-up
CANCER SITE WORKING GROUPS: Consortia and Transdisciplinary Science
11:00 a.m. – 12:30 p.m.
Various Locations
Discussion Questions:
  1. What is the state of the science - what do we know?
  2. What are the scientific gaps - what do we not know?
  3. What obstacles (scientific, infrastructure, technical) impede progress, and what needs to be done to remove the obstacles? Are there solutions to some of these problems that work?
  4. What expertise, disciplines, and linkages do we need to "bring to the table" to enhance progress?
  5. What are the partnering opportunities with other DCCPS programs?
Cancer Sites:
  1. Brain and Eye Cancer - HIM Lecture Room (1st Floor)
    Moderators: Melissa Bondy, Ph.D., and Daniela Seminara Ph.D., M.P.H.
  2. Endometrial Cancer - Room 217 (2nd Floor)
    Moderators: Pamela Horn-Ross, Ph.D., and Virginia Hartmuller, Ph.D., R.D.
  3. Esophageal, Liver, Stomach, and Renal Cancer - Room 216 (2nd Floor)
    Moderators: Marilie Gammon, Ph.D., Alexander Parker, Ph.D. and Mukesh Verma, Ph.D.
  4. Head and Neck Cancer - HIM Lecture Room (1st Floor)
    Moderators: Qingyi Wei, M.D., Ph.D., and Deborah Winn, Ph.D.
  5. Hodgkin's Disease and Leukemia - Room 217 (2nd Floor)
    Moderators: Sara Strom, Ph.D., and Isis Mikhail, M.D., M.P.H., Dr.P.H.
  6. Non-Hodgkin's Lymphoma, Myeloma, and Kaposi's Sarcoma - Bray Room (1st Floor)
    Moderators: James Cerhan, M.D., Ph.D., and Vaurice Starks, B.S.
  7. Ovarian and Testicular Cancer - Amphitheater (ground floor)
    Moderators: Roberta Ness, M.D., M.P.H., and Fernando Arena, M.D., Ph.D.
LUNCHEON KEYNOTE ADDRESS
12:30 p.m. – 2:00 p.m.
Rotunda (3rd Floor)
Bioinformatics Initiatives at NCI
Deborah Winn, Ph.D.
Chief, Clinical and Genetic Epidemiology Research Branch
Epidemiology and Genetics Research Program
2:00 p.m. – 2:15 p.m.
Medical School Quad
Group Photo
(across the street from Conference Center at Harvard Medical Center)
PLENARY SESSION AND PANEL DISCUSSION
2:15 p.m. – 3:30 p.m.
Amphitheater (ground floor)
Transdisciplinary Science: Partnering Population and Basic Sciences

Session Chair: Graham Colditz, M.D., Dr.P.H.
Professor of Medicine, Brigham and Women's Hospital
Harvard University

Merging Basic and Population Sciences to Elucidate Mechanisms of Breast Cancer Development
Jonine Bernstein, Ph.D.
Associate Attending Epidemiologist
Memorial Sloan-Kettering Cancer Center

Synergizing Pharmacology, Clinical Medicine, and Population Science to Improve Treatment and Care of Myeloma Patients
Kenneth Anderson, M.D.
Director, Jerome Lipper Multiple Myeloma Center
Dana-Farber Cancer Institute

Remarks
Jorge Gomez, M.D., Ph.D.
Chief, Organ Systems Program
National Cancer Institute

Shelia Zahm, Sc.D.
Deputy Director, Division of Cancer Epidemiology and Genetics
National Cancer Institute

3:30 p.m. – 4:00 p.m.
Lobby (ground floor)
Break
CANCER SITE WORKING GROUPS
4:30 p.m. – 5:30 p.m.
(return to morning locations)
Continuation of morning session: Setting priorities and resources

Discussion Questions:

  1. What are priorities for action?
  2. What should the next steps be?
5:30 – 7:30 p.m.
Rotunda (3rd floor)
Reception and Poster Session
7:30 p.m. – 8:30 p.m.
Rotunda (3rd floor)
Poster Session II Tear-down
TBD Chairs and Co-chairs of Respective Working Groups Meet
(Informal meetings to synthesize information from the day)

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Tuesday, September 13 Topic
Westin Copley Place
8:00 a.m. – 9:00 a.m.
Essex South Room
Continental Breakfast

New Investigator Breakfast Roundtables:
Becoming a Successful Senior Scientist

Jonine Bernstein, Ph.D.
Associate Attending Epidemiologist
Memorial Sloan-Kettering Cancer Center

Leslie Bernstein, Ph.D.
Professor, Norris Comprehensive Cancer Center
University of Southern California

Melissa Bondy, Ph.D.
Professor, Department of Epidemiology
The University of Texas M.D. Anderson Cancer Center

James Cerhan, M.D., Ph.D.
Professor of Epidemiology
Mayo Clinic College of Medicine

Elizabeth Holly, Ph.D.
Professor and Chief, Division of Cancer Epidemiology
University of California at San Francisco

8:00 a.m. – 10:00 a.m. Working Group Chairs and Co-chairs Working Breakfasts
9:00 a.m. – 10:00 a.m. RARE CANCER ADVOCACY SESSION
10:00 a.m. – 10:30 a.m. Break
10:00 a.m. – 11:45 a.m. Report Backs
Session Chair: Hoda Anton-Culver, Ph.D.
Professor and Chief, Epidemiology Division
University of California, Irvine
11:45 a.m. – 12:00 p.m. Meeting Evaluation, Wrap-up, and The Bottom Line….
Ed Trapido, Sc.D.
Associate Director, Epidemiology and Genetics Research Program
National Cancer Institute

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