EGRP News Flash - June 13, 2011

Public Comment Sought on UK Biobank Draft Access Procedures

The purpose of UK Biobank is to establish a population-based resource that can support a diverse range of research intended to improve the prevention, diagnosis, and treatment of many different types of illness (such as cancer, heart disease, diabetes, dementia, and joint problems). Between 2007-2010, UK Biobank conducted its recruitment phase of 500,000 participants who gave their consent, answered questions, had measurements, and gave samples (blood, urine, and saliva) at a baseline assessment visit. Follow-up of their health is now being conducted through medical and other health-related records.

Researchers working in countries around the world will be able to apply to use the resource. The UK Biobank is supported by the Wellcome Trust, the Medical Research Council, Department of Health, Scottish Government, British Heart Foundation and the Northwest Regional Development Agency, National Health Service, and others.

The UK Biobank is seeking public comment on their draft access procedures for use of this unique resource for health-related research. Feedback should be sent by July 6, 2011, either by e-mail to or by mail to UK Biobank (Consultation), 1-2 Spectrum Way, Adswood, Stockport, SK3 0SA.

The draft access procedures (and related materials) can be found on the UK Biobank Web site. Learn more about the UK BiobankExternal Web Site Policy.

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