Breast Cancer Surveillance Consortium (BCSC)
Lead Contact and/or Principal Investigator (PI):
- Ellen O'Meara, Ph.D.
Group Health Research Institute
Funded Since: 1994
Funding Source: NCI Extramural Program (Division of Cancer Control and Population Sciences, Contract #HHSN261201100031C)
Year(s) of Enrollment: 1994-2009
Study Website: https://www.bcsc-research.org/
Established in 1994 in response to the 1992 Mammography Quality Standards Act (MQSA), the Breast Cancer Surveillance Consortium (BCSC) develops and conducts collaborative research projects that use common data elements contributed by its network of seven mammography registries across the United States.
Funded by the National Cancer Institute (NCI), the BCSC evolved into a national resource for population-based research. During 1994-2011, R01 and cooperative agreement mechanisms were used to fund data collection by the mammography registries and data submission to the BCSC Statistical Coordinating Center (SCC), which pooled the data. Active BCSC mammography registries include the Carolina Mammography Registry, the Group Health Registry, New Hampshire Mammography Network, San Francisco Mammography Registry, and Vermont Breast Cancer Surveillance System. Two additional registries, the inactive Colorado Mammography Project and the affiliated New Mexico Mammography Project, were funded from 1994 to 2005. The pooled database, now archived, is central to the BCSC Research Resource (BCSC-RR) and includes pooled data from these seven registries.
In 2011, the NCI awarded a contract to the SCC to create the BCSC-RR and make the resource widely available to the scientific community. The BCSC-RR provides reliable and comprehensive data on breast cancer screening based on longitudinal records from individuals seen in community practice, linked to breast cancer outcomes, to understand the public health impact of screening. It contains demographic, risk factor, mammography, pathology, and tumor, and vital status data on over 2.3 million women with >9.5 million mammograms and >95,000 breast cancers.