Colon Cancer Family Registry
Contacts: Refer to website for contacts.
Study Website: http://www.coloncfr.org
|Number of Enrolled Cancer Patients/Survivors:||9,583 colorectal cancer patients enrolled (plus 18,275 enrolled relatives and 4,244 population-based controls)|
|Years of Diagnoses of Enrolled Cancer Patients/Survivors:||1997-2007|
|Approximate Years of Follow-up:||Currently up to 14 years with active and passive follow-up ongoing (5- and 10-year follow-up interviews and do passive follow-up annually via SEER, SSDI, and project newsletters.)|
|Cancer Sites Represented:||Colon & Rectum|
|Biological Specimens Collected:||
Normal Tissue (formalin-fixed) Germline DNA
Formalin Fixed Tumor Tissue
|Treatment Outcome Measures:||
Physician/Medical Record Reported
|Co-morbidities at Study Entry:||
Body Mass Index
Other (family history, NSAID use, hormone therapy, reproductive history, screening history, etc.)
|Treatment Data: (As Available)||
Typically limited to 1st course of treatment (e.g., radiation vs. chemotherapy, single-drug vs. multiple-drug chemotherapy).
|Treatment Data Assessed By:||
Patient Reported Questionnaire
Other: Collected via medical records and pathology reports when consent is provided, SEER (where applicable), and self-report.
|Is the study open to collaboration?||Yes (The C-CFR has a long history of collaboration with researchers in the United States and around the world.)|