University of North Carolina (UNC) Health Registry/Cancer Survivorship Cohort

The information on this page is archived and provided for reference purposes only.

Contacts:

Study Website: http://www.unchealthregistry.orgExternal Web Site Policy

Number of Enrolled Cancer Patients/Survivors: 500 patients through Sept 2011; enrollment is ongoing with 10,000 anticipated cancer patients to be enrolled
(English and Spanish speaking, ~20% African American)
Years of Diagnoses of Enrolled Cancer Patients/Survivors: currently 2010-2011; enrollment is ongoing
Approximate Years of Follow-up: Annual follow-up to begin in 2012 and continue as long as funding available
Cancer Sites Represented: Bladder
Breast
Colon & Rectum
Kidney
Liver
Pancreas
Prostate
Stomach
Other (All sites eventually)
Biological Specimens Collected: Blood/Blood Fraction
Buccal Cells
Germline DNA
Formalin Fixed Tumor Tissue
Fresh Frozen Tumor Tissue
Treatment Outcome Measures: Physician/Medical Record Reported
  • Symptom Assessment
  • Acute Medical Event
  • Late Medical Event
  • Quality of Life
  • Cancer Recurrence
  • Death
  • Other
Patient-Reported
  • Symptom Assessment
  • Acute Medical Event
  • Late Medical Event
  • Quality of Life
  • Cancer Recurrence
  • Death (from family members/NDI)
  • Other
Co-morbidities at Study Entry: Diabetes
Heart Disease
Pulmonary Disease
Other
Lifestyle Factors: Smoking
Alcohol Use
Physical Activity
Body Mass Index
Weight Loss/Control
Other
Treatment Data: Surgery
Radiation
Chemotherapy
Hormonal Therapy
Bone Marrow/Stem Cell Transplant
Treatment Data Assessed By: Administrative Claims Data
Electronic Record
Chart Abstraction
Patient Reported Questionnaire
Other
Is the study open to collaboration? Yes

Return to Top

The information on this page is archived and provided for reference purposes only.