National and State Cancer Registries

This compilation of resources provides links to information on cancer statistics, such as incidence, mortality, and the prevalence of certain risk factors.


Registry Resources

These resources provide information about sources of national and statewide cancer statistics.

NCI Registries

  • Surveillance, Epidemiology, and End Results (SEER) ProgramExternal Web Site Policy
    The Surveillance, Epidemiology, and End Results (SEER) Program collects information on cancer incidence, prevalence, and survival from specific geographic areas representing 28 percent of the U.S. population and reports on all of these plus cancer mortality for the entire country.
  • SEER-Medicare Linked DatabaseExternal Web Site Policy
    Data for this database come from the SEER Program of cancer registries that collects clinical, demographic, and cause of death information for persons with cancer, and from Medicare claims for covered health care services from the time of a person's Medicare eligibility until death.

Other National Registries

  • North American Association of Central Cancer Registries (NAACCR)External Web Site Policy
    The North American Association of Central Cancer Registries (NAACCR) is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and epidemiologic research, public health programs, and patient care.
  • National Program of Cancer RegistriesExternal Web Site Policy
    The Centers for Disease Control and Prevention's (CDC) National Program of Cancer Registries (NPCR) provides support for states and territories to maintain registries that provide high-quality data. The Web site includes cancer statistics and an online query system for cancer incidence data. NPCR supports statewide, population-based cancer registries in 45 states, the District of Columbia, Puerto Rico, and the U.S. Pacific Island Jurisdictions.

State/Regional Registries

State/National Registries Year Data Collection Began
Alabama Statewide Cancer RegistryExternal Web Site Policy * 1996
Alaska Cancer RegistryExternal Web Site Policy * All Alaska: 1996
Alaska NativesExternal Web Site Policy **: 1999
Arizona Cancer RegistryExternal Web Site Policy * All Arizona: 1981
American IndiansExternal Web Site Policy **: 1973
Arkansas Central Cancer RegistryExternal Web Site Policy * 1996
California Cancer RegistryExternal Web Site Policy **

- Greater Bay Area Cancer RegistryExternal Web Site Policy **

- Los AngelesExternal Web Site Policy **

All California: 1988

San Francisco-OaklandExternal Web Site Policy: 1973
San Jose-MontereyExternal Web Site Policy: 1992

1992

Colorado Central Cancer RegistryExternal Web Site Policy * All Colorado: 1988
Denver Metro Area: 1979
Connecticut Tumor RegistryExternal Web Site Policy ** 1935
Delaware Cancer RegistryExternal Web Site Policy * 1980
Florida Cancer Data SystemExternal Web Site Policy * 1981
Georgia Comprehensive Cancer RegistryExternal Web Site Policy * / ** All Georgia: 1995
Greater Georgia AreaExternal Web Site Policy **: 1998
AtlantaExternal Web Site Policy **: 1975
Rural GeorgiaExternal Web Site Policy **: 1978
Hawaii Tumor RegistryExternal Web Site Policy** 1973
Idaho Cancer RegistryExternal Web Site Policy * 1971
Illinois State Cancer RegistryExternal Web Site Policy * 1986
Indiana State Cancer RegistryExternal Web Site Policy * 1987
Iowa Cancer RegistryExternal Web Site Policy * 1973
Kansas Cancer RegistryExternal Web Site Policy * 1968
Kentucky Cancer RegistryExternal Web Site Policy ** 1991
Louisiana Tumor RegistryExternal Web Site Policy * / ** All Louisiana: 1995
- through SEERExternal Web Site Policy **: 2000
New Orleans**: 1974-1977, 2000
Maine Cancer RegistryExternal Web Site Policy * 1983
Maryland Cancer RegistryExternal Web Site Policy * 1996
Massachusetts Cancer RegistryExternal Web Site Policy * 1982
Michigan Cancer Surveillance ProgramExternal Web Site Policy * / ** All Michigan: 1985
Detroit Metro AreaExternal Web Site Policy **: 1973
Minnesota Cancer Surveillance SystemExternal Web Site Policy * 1988
Mississippi Cancer RegistryExternal Web Site Policy * 1996
Missouri Cancer RegistryExternal Web Site Policy * 1996
Montana Central Tumor RegistryExternal Web Site Policy * 1979
Nebraska Cancer RegistryExternal Web Site Policy * 1987
Nevada Central Cancer RegistryExternal Web Site Policy * 1979
New Hampshire State Cancer RegistryExternal Web Site Policy * 1986
New Jersey State Cancer RegistryExternal Web Site Policy ** 1979-1989, 2000
New Mexico Tumor RegistryExternal Web Site Policy ** 1973
New York State Cancer RegistryExternal Web Site Policy * 1976
North Carolina State Central Cancer RegistryExternal Web Site Policy * 1990
North Dakota Cancer RegistryExternal Web Site Policy * 1997
Ohio Cancer Surveillance SystemExternal Web Site Policy * 1996
Oklahoma Central Cancer RegistryExternal Web Site Policy All Oklahoma: 1997
Cherokee NationExternal Web Site Policy: 1997
Oregon State Cancer RegistryExternal Web Site Policy * 1996
Rhode Island Cancer RegistryExternal Web Site Policy * 1986
South Carolina Central Cancer RegistryExternal Web Site Policy * 1966
South Dakota Cancer RegistryExternal Web Site Policy * 2005
Tennessee Cancer RegistryExternal Web Site Policy * 1986
Texas Cancer RegistryExternal Web Site Policy * 1995
Utah Cancer RegistryExternal Web Site Policy ** 1973
Vermont Cancer RegistryExternal Web Site Policy *

- Researchers One-Stop SiteExternal Web Site Policy

1994
Virginia Cancer RegistryExternal Web Site Policy * 1990
Washington State Cancer RegistryExternal Web Site Policy * / ** All Washington: 1994
Seattle-Puget SoundExternal Web Site Policy **: 1974
West Virginia Cancer RegistryExternal Web Site Policy * 1993
Wisconsin Cancer Reporting SystemExternal Web Site Policy * 1995
Wyoming Cancer Surveillance ProgramExternal Web Site Policy * 1962
Territories
Puerto Rico Central Cancer RegistryExternal Web Site Policy * / ** 1973-1989**, 1999*
U.S.-Affiliated Pacific Island JurisdictionsExternal Web Site Policy * 2009

* National Program of Cancer Registries (NPCR)External Web Site Policy

** Surveillance, Epidemiology, and End Results (SEER) ProgramExternal Web Site Policy

Return to Top

Private Databases

These databases may be used to assess patterns and quality of cancer care.

  • American College of Surgeons National Cancer DatabaseExternal Web Site Policy
    The American College of Surgeons National Cancer Database (NCDB) is a nationwide oncology outcomes database for more than 1,500 Commission-accredited cancer programs in the United States and Puerto Rico. About 70 percent of all newly diagnosed cases of cancer in the United States are captured at the institutional level and reported to it. Begun in 1989, the database contains records from hospital cancer registries across the United States. Data on all types of cancer are tracked and analyzed, and are used to explore trends in cancer care, to create regional and state benchmarks for participating hospitals, and to serve as the basis for quality improvement.
  • Healthcare Cost and Utilization Project (HCUP)External Web Site Policy
    The Healthcare Cost and Utilization Project (HCUP) is a family of health care databases and related software tools developed through a Federal-State-Industry partnership to build a multi-State health data system for health care research and decision making.
  • National Comprehensive Cancer NetworkExternal Web Site Policy
    The National Comprehensive Cancer Network® (NCCN®), which is a not-for-profit alliance of 21 of the world's leading cancer centers, is dedicated to improving the quality and effectiveness of care provided to patients with cancer. The NCCN Guidelines® are a comprehensive set of guidelines detailing the sequential management decisions and interventions for the malignant cancers that affect 97 percent of all patients with cancer. In addition, separate guidelines relate to major prevention and screening topics and another set of pathways focuses on the major supportive care areas. The NCCN Drugs & Biologics Compendium (NCCN Compendium™) is based directly on the recommendations contained in the NCCN Guidelines® and designed to support decision-making about the appropriate use of drugs and biologics in patients with cancer.

Return to Top