Research Resources for Cancer Epidemiology and Genomics

The Epidemiology and Genomics Research Program (EGRP) has developed a list with links to a number of cancer-related research resources available through EGRP-supported cohorts, consortia, and initiatives; other research programs in the Division of Cancer Control and Population Sciences and NCI; and partners elsewhere at NIH and other research organizations.

  • Biospecimens
    This list provides links to biospecimen resources that may be of interest to cancer epidemiologists, but is not exhaustive.
  • Cancer Epidemiology Cohorts
    Learn about EGRP-supported cancer epidemiology cohorts (CECs), relevant funding opportunities, research resources, and publications.
  • Cancer Epidemiology Consortia
    EGRP is supporting a growing number of national and international research consortia focusing on intradisciplinary and translational research on common and rare cancers. Learn more about EGRP-supported cancer research consortia by cancer type and assistance available for cancer epidemiology consortia.
  • Cancer Genomics and Epidemiology Navigator
    The Cancer Genomics and Epidemiology Navigator (CGEN) is an integrated, searchable and updated knowledge base on the impact of genomic, environmental and clinical factors on cancer occurrence and outcomes.
  • Cancer Patient and Survivor Cohort Studies
    Links to cancer survivor data resources identified during an EGRP-sponsored workshop held November 3, 2011 that may be of interest to cancer epidemiologists.
  • Genomic Resources
    Includes links to collaborative initiatives, datasets, and NIH policy information related to population-based genetics research.
  • Maps and Geographic Information Systems
    Compilation of NCI initiatives and sources of cancer-related maps, GISs, training, and more.
  • National and State Cancer Registries
    This compilation of resources provides links to information on cancer statistics, such as incidence, mortality, and the prevalence of certain risk factors.
  • Pharmacoepidemiology and Healthcare Databases
    Access national and international data that can help answer outstanding questions of cancer-related outcomes.
  • Pharmacogenomic Resources
    Links to pharmacogenomics collaborative opportunities, consortia, and networks; databases related to pharmacogenomics research; knowledge synthesis resources; reports; and toolkits.
  • Risk Prediction Models
    Information about various types of cancer risk prediction models, including compilation of existing risk prediction models by cancer type.
  • Statistics
    Links to sources of cancer-related statistics, including the Surveillance, Epidemiology and End Results (SEER) Program, SEER-Medicare datasets, cancer survivor prevalence data, and the Cancer Trends Progress Report.
  • Surveys
    Compilation of surveys containing information which may be useful for cancer epidemiology and genomics studies, including behavioral risk factors, health information, medical care, and more.

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