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Epidemiology and Genomics Research Program

Charlisse Caga-anan, JD

Program Director
Genomic Epidemiology Branch, Epidemiology and Genomics Research Program

Telephone: (240) 276-6738

  • JD, University of Minnesota Law School
  • MA - Bioethics, Case Western Reserve University
  • BA - English, University of Washington
Contact for questions about:
  • Bioethics
  • Ethical, Legal and Social Implications (ELSI)
  • Genetic Counseling
  • Hematologic Cancers
  • Genomic Data Sharing Policy
  • Data Management and Sharing Policy


Ms. Charlisse Caga-anan is a program director in the Genomic Epidemiology Branch (GEB) of the Epidemiology and Genomics Research Program (EGRP) in NCI's Division of Cancer Control and Population Sciences (DCCPS). In this capacity, she works to implement the NIH Genomic Data Sharing Policy and grow NCI's portfolio of bioethics research grants. She currently serves as the DCCPS Genomic Program Administrator and was formerly the chair of the extramural NCI Data Access Committee (eNCI DAC). She also works to implement the new NIH Data Management and Sharing Policy.

Ms. Caga-anan is the NCI scientific contact for the NHGRI funding opportunities to conduct research on the ethical, legal and social implications (ELSI) of genomics (R01, R21, and R03). She is also an NCI point of contact for NIH-funded bioethics research. She co-organizes the NCI Ethical and Regulatory Issues in Cancer Research (ENRICH) Forum.

Prior to joining EGRP, Ms. Caga-anan was a postdoctoral scholar at the Center for Genetic Research Ethics and Law, an NIH-funded Center for Excellence in Ethical, Legal, and Social Implications (ELSI) Research. In this capacity, she conducted research pertaining to ELSI issues in genetics/genomics research. Ms. Caga-anan also completed the Cleveland Fellowship in Advanced Bioethics, during which she trained in clinical ethics consultation and examined ethical and legal issues in pediatrics, clinical genetics, genetics/genomics research.

Select Publications

Samimi G, Bernardini MQ, Brody LC, Caga-Anan CF, Campbell IG, Chenevix-Trench G, Couch FJ, Dean M, de Hullu JA, Domchek SM, Drapkin R, Spencer Feigelson H, Friedlander M, Gaudet MM, Harmsen MG, Hurley K, James PA, Kwon JS, Lacbawan F, Lheureux S, Mai PL, Mechanic LE, Minasian LM, Myers ER, Robson ME, Ramus SJ, Rezende LF, Shaw PA, Slavin TP, Swisher EM, Takenaka M, Bowtell DD, Sherman ME. Traceback: A Proposed Framework to Increase Identification and Genetic Counseling of BRCA1 and BRCA2 Mutation Carriers Through Family-Based Outreach. J Clin Oncol. 2017 Jul 10;35(20):2329-2337.

Amos CI, Dennis J, Wang Z, Byun J, Schumacher FR, Gayther SA, Casey G, Hunter DJ, Sellers TA, Gruber SB, Dunning AM, Michailidou K, Fachal L, Doheny K, Spurdle AB, Li Y, Xiao X, Romm J, Pugh E, Coetzee GA, Hazelett DJ, Bojesen SE, Caga-Anan C, Haiman CA, Kamal A, Luccarini C, Tessier D, Vincent D, Bacot F, Van Den Berg DJ, Nelson S, Demetriades S, Goldgar DE, Couch FJ, Forman JL, Giles GG, Conti DV, Bickeböller H, Risch A, Waldenberger M, Brüske-Hohlfeld I, Hicks BD, Ling H, McGuffog L, Lee A, Kuchenbaecker K, Soucy P, Manz J, Cunningham JM, Butterbach K, Kote-Jarai Z, Kraft P, FitzGerald L, Lindström S, Adams M, McKay JD, Phelan CM, Benlloch S, Kelemen LE, Brennan P, Riggan M, O'Mara TA, Shen H, Shi Y, Thompson DJ, Goodman MT, Nielsen SF, Berchuck A, Laboissiere S, Schmit SL, Shelford T, Edlund CK, Taylor JA, Field JK, Park SK, Offit K, Thomassen M, Schmutzler R, Ottini L, Hung RJ, Marchini J, Amin Al Olama A, Peters U, Eeles RA, Seldin MF, Gillanders E, Seminara D, Antoniou AC, Pharoah PD, Chenevix-Trench G, Chanock SJ, Simard J, Easton DF. The OncoArray Consortium: A Network for Understanding the Genetic Architecture of Common Cancers. Cancer Epidemiol Biomarkers Prev. 2017 Jan;26(1):126-135.

Green RC, Goddard KAB, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. Am J Hum Genet. 2016 Jun 2;98(6):1051-1066.

Caga-anan EC, Smith L, Sharp RR, Lantos JD. Testing children for adult-onset genetic diseases. Pediatrics. 2012 Jan;129(1):163-7.

Caga-anan EC, Thomas AJ. Requests for "non-therapeutic" interventions in children. In: Diekema DS, Mercurio M, Adam MB, eds. Clinical Ethics in Pediatrics: A Case-Based Textbook. New York: Cambridge University Press 2011:43.

Wolf SM, Paradise J, Caga-anan C. The law of incidental findings in human subjects research: establishing researchers' duties. J Law Med Ethics. 2008 Summer;36(2):361-83, 214.