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Epidemiology and Genomics Research Program

Charlisse Caga-anan, JD

Program Director
Genomic Epidemiology Branch, Epidemiology and Genomics Research Program

Telephone: 240-276-6738

  • JD, University of Minnesota Law School
  • MA - Bioethics, Case Western Reserve University
  • BA - English, University of Washington
Contact for questions about:
  • Bioethics
  • Ethical, Legal and Social Implications (ELSI)
  • Genetic Counseling
  • Hematologic Cancers
  • Genomic Data Sharing Policy
  • Data Management and Sharing Policy


Charlisse Caga-anan, JD, is a program director in the Genomic Epidemiology Branch (GEB) of the Epidemiology and Genomics Research Program (EGRP) in NCI's Division of Cancer Control and Population Sciences (DCCPS). In this capacity, she works to implement the NIH Genomic Data Sharing Policy and grow NCI's portfolio of bioethics research grants. She currently serves as the DCCPS Genomic Program Administrator and was formerly the chair of the extramural NCI Data Access Committee (eNCI DAC). She also works to implement the new NIH Data Management and Sharing Policy.

Ms. Caga-anan is the NCI scientific contact for the NHGRI funding opportunities to conduct research on the ethical, legal and social implications (ELSI) of genomics (R01, R21, and R03). She is also an NCI point of contact for NIH-funded bioethics research. She co-organizes the NCI Ethical and Regulatory Issues in Cancer Research (ENRICH) Forum.

Prior to joining EGRP, Ms. Caga-anan was a postdoctoral scholar at the Center for Genetic Research Ethics and Law, an NIH-funded Center for Excellence in Ethical, Legal, and Social Implications (ELSI) Research. In this capacity, she conducted research pertaining to ELSI issues in genetics/genomics research. Ms. Caga-anan also completed the Cleveland Fellowship in Advanced Bioethics, during which she trained in clinical ethics consultation and examined ethical and legal issues in pediatrics, clinical genetics, genetics/genomics research.

Select Publications

Samimi G, Bernardini MQ, Brody LC, et al. Traceback: a proposed framework to increase identification and genetic counseling of BRCA1 and BRCA2 mutation carriers through family-based outreach. J Clin Oncol. 2017;35(20):2329-2337.

Amos CI, Dennis J, Wang Z, et al. The OncoArray Consortium: a network for understanding the genetic architecture of common cancers. Cancer Epidemiol Biomarkers Prev. 2017;26(1):126-135.

Green RC, Goddard KAB, Jarvik GP, et al. Clinical Sequencing Exploratory Research Consortium: accelerating evidence-based practice of genomic medicine. Am J Hum Genet. 2016;98(6):1051-1066.

Caga-anan EC, Smith L, Sharp RR, Lantos JD. Testing children for adult-onset genetic diseases. Pediatrics. 2012;129(1):163-7.

Caga-anan EC, Thomas AJ. Requests for "non-therapeutic" interventions in children. In: Diekema DS, Mercurio M, Adam MB, eds. Clinical Ethics in Pediatrics: A Case-Based Textbook. New York: Cambridge University Press 2011:43.

Wolf SM, Paradise J, Caga-anan C. The law of incidental findings in human subjects research: establishing researchers' duties. J Law Med Ethics. 2008;36(2):361-83,214.